Other special ambassadors
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Ben
Benjamin was diagnosed with Spina Bifida Myelomeningocele and Hydrocephalus at his Mum Catherine’s 20-week antenatal anatomy scan.
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Lucca
Lucca was diagnosed with an extremely rare and highly aggressive cancer called Epethelioid Inflammatory Myofibroblastic Sarcoma when she was just 16 months old.
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Paige
Paige was born on December 6, 2021, entering the world prematurely at just 23 weeks and 4 days gestation, and weighing a tiny 525 grams
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Eva
Eva was born with only half a diaphragm after suffering a diaphragmatic hernia during fetal development.
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Isla
Isla lives with type 1 diabetes. While type 1 diabetes is currently incurable, there are treatments available, but unfortunately all have a considerable impact on a person’s day-to-day life.
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Jeremy
Born at 29 weeks and 5 days, Jeremy is one of the approximately 700 babies born preterm each year.
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Mela
Mela is diagnosed with an incredibly rare condition called Moebius syndrome
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Amelia & Grace
Twins Grace and Amelia were born prematurely at 27 weeks. They have extreme chronic lung disease and Grace had her first open heart bypass surgery at 8 weeks of age.
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Corin
Corin lives with a very rare genetic heart condition
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Addison
Addison was diagnosed with a staph infection, which caused damage to her heart.
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Isabella
Bella was diagnosed with cystic fibrosis at her Mothers 27-week anatomy scan
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Hunter
Hunter was diagnosed with type 1 diabetes after his family noticed he was always thirsty and that his moods had changed.
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Matt Johnson
Meet Matt Johnson, a former midfielder for the Blues rugby team. Matt had rheumatic fever when he was 13 and has been experiencing severe heart problems ever since.
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Sophie
A urine test showed glucose, and a subsequent finger prick blood test showed elevated blood glucose.
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Richie
He had a persistent cough, had lost weight and become so lethargic he was short of breath even when lying flat on a bed.
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Kase
Kase lives with cystic fibrosis, a condition is typically detected at birth, but Kase was diagnosed at 8.
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Jaide
Jaide lives with chronic asthma and type-1 diabetes.
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Jackson
Jackson had a tumour the size of a tennis ball attached to his optic nerve.
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Finn
Finn was diagnosed with hypoplastic right heart, when his mother was 20 weeks pregnant.
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Finlay
Finlay was diagnosed with type -1 diabetes at three-years-old.
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Chloe
Our gorgeous little ambassador Chloe has suffered respiratory issues since she was an infant.
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Brooke
At six years old, Brooke was diagnosed with gelastic seizures.
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Brayden
In 2009, Brayden was cooking noodles when his t-shirt caught fire from the stove element. He received burns to 45 percent of his body.