Iziyah is diagnosed with a rare immune disorder called Chronic Granulomatous Disease (CGD)

In February 2013 at age 2, Iziyah was diagnosed with a rare immune disorder called Chronic Granulomatous Disease (CGD). This was found through a pneumonia, and he had 1/3 of one lung removed due to an abscess.

In August 2013, Iziyah had an unrelated Bone Marrow Transplant in the hope to cure the CGD. This was successful but in 2014, he developed symptoms of Chronic Graft vs Host Disease – a complication of the transplant- affecting mouth, gut, skin & mildly lungs (bronchiolitis obliterans).

Iziyah also has an irreversible lung condition called Bronchiectasis.

On top of all the health issues, Iziyah is also losing his vision due to original disease. This will eventually progress to blindness. He is currently blind in one eye and has a small tunnel of vision in the other eye. It is unsure as to how long this will last.

Iziyah, lives with his Mum Dani and Sister Kaylee. He is 7 years of age and dreams of riding motorbike. He is a superstar!

More research needs to be done to help children who live with genetic and respiratory conditions. Cure Kids is supporting research in both areas. 

Current genetic conditions research

Current respiratory conditions research

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