Riley

Riley was diagnosed with a multi-cystic kidney, while his mother was 18 weeks pregnant.

Riley was diagnosed with a multi-cystic kidney, while his mother was 18 weeks pregnant.

Riley was born three weeks early, weighing in at 5pd, 3oz. He had to stay in neo-nates and endure constant heel pricks, and blue light for jaundice.

Initially paediatricians came back and thought it was now a tumor, and prepared for him to be operated on. After running a series of tests, it was confirmed Riley had a multi cystic kidney. The left kidney had no functionality and four large cysts, whereas the right kidney was perfect.

It was decided that Riley was too small to operate on, he was to come back when he was three months old for surgery. He was on daily antibiotics for the first three months, to ward off any infection of his good kidney.

On arrival to undergo his surgery, Riley had more scans and it turned out his body dissolved his bad kidney entirely. There was now no need for surgery.

Between 20 months-old and 2-years-old Riley was admitted to hospital twice with a cold and breathing problems, and on top of this there were many episodes in between where he wasn’t admitted. At two-years-of-age he was diagnosed with asthma. He started on preventative flixatide, and ventolin daily and needed redipred or predisone steroid.

Initally his asthma was induced virally, but had gained many triggers from; animals, hay-fever, sudden temperature drops and dust.

Riley experienced seven admissions from 2012-2014. After a coming through a massive asthma attack, his family and friends are well prepared with an asthma plan, so everybody knows where he is at.

in 2015 Riley started on Montelukast, a tablet he takes daily which has changed his life. His asthma episodes became fewer and fewer.

In 2016 Riley went a year since his last dose of steroid.

Riley is a very active, sport loving boy. He loves running, touch rugby, and hockey, and playing both summer and winter sports.

He also loves rugby, but due to only having one kidney he has never played, although he dreams of becoming and international rugby referee.

Every year, a devastating 70 Kiwis die from asthma.

Cure Kids is proud to have supported research into finding better treatments and cures for asthma. Cure Kids co-funded a trial testing the efficacy of a new smart-inhaler, SmartTrack, which uses ringtones as cues to children on asthma medication if they’ve missed a dose.

Preventive medication, when taken consistently, improves overall health and reduces the need for reliever medication. SmartTrack also has the added benefit of providing detailed feedback to medical practitioners about patterns of use. It is great tool to improve asthma treatment, and reduce the number of school days missed.