Professor Jon Skinner

Professor Jon Skinner has been New Zealand's only specialist in children’s heart rhythm disorders since 1998 when he arrived from the UK.

Professor Jon Skinner has been New Zealand’s only specialist in children’s heart rhythm disorders since 1998 when he arrived from the UK.

He is based at Starship Children’s Hospital but provides a national consultative service.  He was born and raised in the UK and worked there, as well as in Germany, Australia and New Zealand.  His research, much of which has been supported by Cure Kids,  is focused on reasons for the sudden and unexpected death in young people, with a focus on inherited heart conditions such as long QT syndrome.

He established and leads the national cardiac inherited disease registry which aims to detect families at risk, protect them and enable them to live full and active lives ( He chairs the genetic council of the Cardiac Society of Australia and New Zealand, and the Trans-Tasman Response Against sudden Death in the Young (TRAGADY).

He is advisor to overseas sudden death and inherited heart condition programmes and on the editorial board of Heart Rhythm.  He has authored 120 peer reviewed scientific articles.  He has written a text book and several chapters in various medical texts.

Research Projects

The kids who inspire this research


Brave ambassador Angus was diagnosed with Neurofibromatosis Type 1 at age four.

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At four months old Ben went into heart failure and was flown to Starship…

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In 2012, Caleb began to feel dizzy and experienced tunnel vision while playing sports.…

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Connor Lehan

Connor was initially labeled as a ‘problem child’ during his kindergarten years. He was…

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Connor Morton

Connor was only a year-old when he started to experience jolt like symptoms.

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One afternoon during feeding he went blue and was rushed to the hospital. This…

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