Corin
Corin was born on October 15th 2009.
One afternoon during feeding he went blue and was rushed to the hospital, where he had his first open heart surgery. He sailed through his first surgery, despite battling pneumonia.
On his six-week post op checkup the same thing had occurred again but further along his aorta.
For two and a half months Corin’s mother took him twice a week for monitoring so he could have another surgery at around four months old.
Corin’s second surgery saw him home in a week after another bovine patching of his aorta.
This time the post op check was at just four weeks, but it was all back again.
Corin was put on palliative care then, preventative actions were taken that were less invasive, including stents in his aorta, which are still there now and holding, and a cardiac catheter
When he had his second surgery a genetic blood test took place.
Corin had a very rare genetic condition where he lacked enough elastin in the arteries and veins, therefore it caused them to grow closed. It was then revealed that this is the same condition his brother Tyler had, who tragically and unexpectedly passed away at three months.
Every time Corin had a growth spurt it seemed to set his arteries off, so he now has stenosis of the aorta, pulmonary arteries, carotid arteries, renal arteries and his right femoral artery is completely blocked, but he has a natural bypass with his pelvic artery at this stage.
Corin has side effects of these problems, he is very hypertensive, it has taken six years to get this under control but after working closely with his renal doctor, close monitoring by home-care nurses and cardiacs input this past month he is stable.
As a result of early surgery Corin has terrible scar tissue in his oesphageous which means every day he is walking around breathing through a windpipe as small as a straw.
This is obviously quite restrictive, so he has restrictions on some of his physical needs, like swimming – he isn’t able to follow the normal three strokes one breath sequence, he has to do two strokes and breath.
Corin currently is being seen by Cardiac, Renal, ENT and Vascular. For now, he is stable and doing well. He has roughly about 30 general anestethics, uncountable admissions and ED mad dashes, but he is defying a lot of odds and is going great.
Other special ambassadors
-
PaigePaige was born on December 6, 2021, entering the world prematurely at just 23 weeks and 4 days gestation, and weighing a tiny 525 grams
-
LuccaLucca was diagnosed with an extremely rare and highly aggressive cancer called Epethelioid Inflammatory Myofibroblastic Sarcoma when she was just 16 months old.
-
SophieA urine test showed glucose, and a subsequent finger prick blood test showed elevated blood glucose.
-
RichieHe had a persistent cough, had lost weight and become so lethargic he was short of breath even when lying flat on a bed.
-
MelaMela is diagnosed with an incredibly rare condition called Moebius syndrome
-
KaseKase lives with cystic fibrosis, a condition is typically detected at birth, but Kase was diagnosed at 8.
-
JeremyBorn at 29 weeks and 5 days, Jeremy is one of the approximately 700 babies born preterm each year.
-
JaideJaide lives with chronic asthma and type-1 diabetes.
-
JacksonJackson had a tumour the size of a tennis ball attached to his optic nerve.
-
HunterHunter was diagnosed with type 1 diabetes after his family noticed he was always thirsty and that his moods had changed.
-
FinnFinn was diagnosed with hypoplastic right heart, when his mother was 20 weeks pregnant.
-
FinlayFinlay was diagnosed with type -1 diabetes at three-years-old.
-
IsabellaBella was diagnosed with cystic fibrosis at her Mothers 27-week anatomy scan
-
EvaEva was born with only half a diaphragm after suffering a diaphragmatic hernia during fetal development.
-
CorinCorin lives with a very rare genetic heart condition
-
ChloeOur gorgeous little ambassador Chloe has suffered respiratory issues since she was an infant.
-
BrookeAt six years old, Brooke was diagnosed with gelastic seizures.
-
BraydenIn 2009, Brayden was cooking noodles when his t-shirt caught fire from the stove element. He received burns to 45 percent of his body.
-
BenBenjamin was diagnosed with Spina Bifida Myelomeningocele and Hydrocephalus at his Mum Catherine’s 20-week antenatal anatomy scan.
-
Amelia & GraceTwins Grace and Amelia were born prematurely at 27 weeks. They have extreme chronic lung disease and Grace had her first open heart bypass surgery at 8 weeks of age.
-
AddisonAddison was diagnosed with a staph infection, which caused damage to her heart.
-
Matt JohnsonMeet Matt Johnson, a former midfielder for the Blues rugby team. Matt had rheumatic fever when he was 13 and has been experiencing severe heart problems ever since.
